HOW CAN I DEAL WITH THIS

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HEY I HAVE A QUESTION WHICH IS OFF THE RECORD AND IT DOES NOT CONCERN MARIO THIS TIME SORRY. ON A SERIOUS NOTE I HAVE A 4 YEAR OLD SON WHO JUST GOT LISTED ON A TRANSPLANT LIST AT GEORGETOWN HOSPITAL IN WASHINGTON DC. HE HAS A RARE BOWEL DISEASE CALLED MICROVILLUS INCLUSION DISEASE SO HE DON'T EAT NOTHING BY MOUTH. HE GETS ALL OF HIS NUTRITIONS THROUGH A CENTAL LINE WHICH IS A TUBE PLACE INSIDE HIS CHEST. IT'S BEEN SO VERY HARD BECAUSE THE DOCTORS CAN'T GUARNTEE ME ANYTHING BECAUSE THIS WILL BE A COMPLICATED PROCEDURE.HE NEEDS A COMBINE LIVER BOWEL TRANSPLANT DONE. WHAT CAN I DO TO KIND OF EASE THE PAIN A LITTLE. I HAVE TRIED EVERYTHING THAT I CAN THINK OF BUT IT ALWAYS SEEM TO BE ON MY MIND WHICH I KNOW IT WILL BE FOR THE REST OF MY LIFE BUT I JUST WANT A DAY THAT I CAN ENJOY WITHOUT HAVING BAD THOUGHTS RUNNING THROUGH MY MIND. I LOVE HIM DEARLY AND I KNOW GOD WILL LOOK OVER HIM AND THE DOCTORS WHEN THEY PERFORM THIS PROCEDURE. I'M OPEN TO ANY IDEAS THAT MAY HELP EASE THE PAIN JUST A LITTLE. LET ME KNOW WHAT YOU THINK AND PLEASE NOW IS NOT THE TIME FOR ANY SMART COMMENTS., THANKS JENEE HUGE

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There other cases of this rare disease out there and there are other options rather than the transplant depending on your situation.

Please visit www.samoconnor.com you can contact our family through there, our sona also has this disease and we know of several others around the country.